Tomorrow marks a year since I was officially diagnosed with Crohn’s disease – we were aware of it earlier but Thursday 12th March 2015 is when it became offical.
In the consultants room that day she said 7/10 people with Crohn’s disease require surgery in the first two years – I remember thinking it was maybe an exaggerated statistic and didn’t give it much thought, I was more concerned with the growing list of meds I would be taking.
10 days later I got sepsis, I seen the emergency surgeon and escaped the need for an operation I was treated with the ‘demestos’ of antibiotics. Relief wasn’t the word. All through the past year has been numerous complications, medications not working and really growing sicker as I tried to persevere hoping things would just get better and the threat of surgery many times.
It has been about surviving not living, getting through one day at a time. I’ve spent Christmas, New Years, Mother’s Day etc in hospital- racking up over 60 nights in hospital and many many appointments.
The final straw came when I had anaphylactic shock and ng feeding failed. Tonight I moved to the surgical ward – the plan is on Monday I become one of the 7/10 people needing surgery in the first two years.
This weekend will be the longest ever but excited to start living again and not just surviving!