When people ask what Crohn’s Disease is like it can be very hard to describe- as well as the whole toilet taboo sometimes it’s just hard to find the words. You find yourself saying its a bit like a stomach bug- for many people a stomach bug is something that lasts 24/48 hours and is a nuisance but it goes away.. Sadly Crohn’s just doesn’t do that!
The definition of Crohn’s Disease from Crohn’s and Colitis UK is..
Crohn’s Disease is a condition that causes inflammation of the digestive system or gut. Crohn’s can affect any part of the gut, though the most common area affected is the end of the ileum (the last part of the small intestine), or the colon.
Crohn’s is a chronic condition. This means that it is ongoing and life-long.
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Sometimes it’s hard to accept you’ll have something for the rest of your life.. It’s hard to think what that will mean ahead- planning becomes difficult..
When I had surgery 9 weeks ago I was really hoping it was a golden ticket out of Crohn’s Disease even though I know there is no cure- I thought after the whole ordeal I would at least be medication free for a while and be back to normal life. I really never imagined I would be back in hospital with a flare up so soon. In some ways it just doesn’t seem fair but when you take time to look back at the hurdles that have been overcome already it doesn’t seem so bad.
There are always going to be tough choices with the disease- not only about medications or surgeries but life choices too. It seems the important thing is that whatever choice you make – it gives you the chance to be living and not just existing.
“It’s hard to beat a person who never gives up.” – Babe Ruth